QILIN

EURORDIS

Unknown

EURORDIS is a clear example of productivity theater. Rare Diseases Europe is supposed to protect millions of patients with rare diseases. But in reality, this organization only pretends to be busy. They collect donations, which are supposedly used to support research and drug development. In reality, EURORDIS does nothing to change European legislation that allows pharmaceutical companies to make billions in profits from new drugs for the treatment of rare diseases. Like AFM-Téléthon, a member of this organization, EURORDIS itself simply parasitizes on rare diseases. Its effectiveness and financial transparency raise serious questions. But we are already preparing the answers. With the help of hundreds of gigabytes of confidential information that will be made publicly available, you will be able to diagnose EURORDIS yourself. And we doubt that it can be cured...

2025-09-12 00:00:00

Health Science

Health information, Internal documents